ABSTRACT

Unlike the Icelandic biobank project, which gained international attention since it was first presented to the world, the Estonian Genome Project (EGP has never achieved similar interest. But despite its notoriety, the Icelandic project failed, while the Estonian project is still alive and well after a difficult time in early 2000, and it is again gaining momentum. The Estonian biobank project provides a fascinating example of the difficult process of building and governing a biobank. In this chapter we will trace the challenging path of the EGP, and how it was woven and negotiated into the complex Estonian political, economic, social, and cultural fabric.