ABSTRACT

This chapter explores personal, political and sociological dimensions of biology and disability, focusing on genetics in particular. In my work with Newcastle’s Policy, Ethics and Life Sciences Research Institute, I spend much of my time talking to schools and community groups about the Human Genome Project, and the social and ethical issues it raises. On these occasions I speak as a sociologist, and a science communicator, and a bioethicist, but also as a member of the disability movement, and as someone with a genetic condition. These different identities and perspectives will shape this chapter.