ABSTRACT
Illness and death are complex and difficult situations to navigate and are even more challenging when a child is facing these issues. This chapter discusses the similarities and differences between pediatric and adult palliative care. This includes unique scenarios such as a patient-centered medical home, supporting and communicating with parents and family caregivers of children with a life-threatening illness, and assisting with communication and decision-making. Domains of pediatric palliative care that are described include care coordination, condition-related pain and distress symptoms, and fatigue and lethargy. In addition to the unique clinical skills of therapists and rehabilitation professionals who work with children, a clear understanding of the palliative care philosophy for children is integral to providing good patient-centered care.
