ABSTRACT
This chapter outlines the concepts related to best practice for caregivers, including clinicians and unpaid caregivers, involved with the care of individuals with life-limiting diseases. Systems of care ideally revolve around the family unit, with supports inherent in the design to promote, maintain, and enhance quality care. Concepts described include the unique experience of the caregiver, including associated risks such as injury; care models, including the patient-centered medical home in palliative care; caregiver training and instruction; LGBTQ considerations in terminal illness; the application of durable medical equipment; strategies for caregiver sustainability associated with caregiver burnout and compassion fatigue; and public advocacy.
