ABSTRACT

This chapter argues that disabled people often experience epistemic injustice within bioethical discussions and in clinical settings. The injustice is twofold: health care professionals tend to take non-disabled perspectives as a paradigm, and the perspectives and narratives of disabled people are often actively rejected or disbelieved. The epistemic injustice experienced by disabled people undermines justice, one of the four widely accepted bioethical principles of Western bioethics (respect for autonomy, beneficence, non-maleficence, and justice). Ho argues that ridding bioethics of its in-built ableism requires a centering of disabled perspectives and narratives on the one hand, and an increased epistemic humility of non-disabled persons (medical professionals and lay persons alike), on the other.