ABSTRACT

This chapter provides an in-depth exploration of Deaf British Sign Language (BSL) users who are living with dementia and how their stories were shared with a wider hearing audience using an approach to re-presentation of data based around cultural brokering. The Deaf with Dementia Project, funded by the Alzheimer's Society, ran from 2010 to 2013 at The University of Manchester in collaboration with other partners. The overarching aim of the initial project was to address the evidential gap in understanding the barriers to the earlier identification of dementia in the signing Deaf community. The recording of lived experiences of people living with dementia started in the late 1980s, as medical and health professionals realised that their client group were actually able to express themselves and that their views and opinions should be valued. An imperative part of communicating in BSL is the use of eye contact. This reflects how one is taking part within a shared conversation.