ABSTRACT
This chapter aims specifically to investigate the collaborations and other forms of interactions related to clinical registries and how these are situated in the large set of institutional ecologies that are embedded in sites of clinical care and clinical research. A clinical registry is used for investigating how frequent a disease occurs, differences in treatment strategies, and how patients respond to treatments over time. The clinical registry constitutes a special form of large-scale research that requires the amassing of data from a large number of patients. The research endeavours related to registries should also be seen in relation to the increasing emphasis to gain solid scientific evidence for clinical practice. The chapter examines the stock of the inquiry and focuses on the operation of registries and reflects on what this suggests regarding the conditions for collaboration in clinical research and in clinical practice.
