ABSTRACT

This chapter explores a hermeneutic-phenomenological reflection of one person's experience of living with Parkinson's disease. The central argument is that understanding the lifeworld of someone with Parkinson's can strengthen and enrich relevant healthcare practices and policies in order to improve peoples' well-being. Carers of people with Parkinson's disease can reflect on how to magnify their contracted spatial horizons by bringing the outside world to them–perhaps bringing beautiful and scented flowers or placing a favoured armchair by a window. Such things aim to enable people like Elsa to grasp their existential possibilities so that well-being might flourish and a sense of existential legitimacy be maintained. In the face of old age and Parkinson's disease which inevitably looks towards death, many things can be done to help access well-being possibilities which render life more liveable and meaningful. The changing nature of Elsa's body is characterized by what Svenaeus calls "unhomelikeness", a sense of no longer inhabiting seamlessly a familiar world.