ABSTRACT
In this chapter, the author describes the ethical concerns and barriers she met while carrying out data collection in the private homes of adults with acquired brain injury (ABI) and their close relatives. In ABI research, and disability research in general, there are several ethical concerns to keep in mind: these adults had suffered from ABI; they could still be in a fragile position; and they may be dealing with cognitive, physical, or psychological consequences. ABI studies only recruit informants who are in some sort of institutional or clinical setting and are therefore easier to approach, since they are either seen every day or have frequent appointments to attend. Several of the informants expressed that it was nice to have someone asking them “how they were feeling.” A lot of people asked them “how they were doing,” but not about their feelings.
