ABSTRACT
The pressure to realize value from existing data sets is rising. This pressure exists in public health and the research community, as well as the commercial world and government. Realizing value means that the data collected for one purpose may be used or disclosed for other, often unplanned, purposes. Because it is unplanned at the outset, these uses and disclosures would also be unexpected by the patients. The patients may be unpleasantly surprised if they find out about these unexpected uses and disclosures. This has an impact on public trust in data custodians.
