ABSTRACT

One falls into a decision that suddenly seems utterly decisive and final. Instead, intuitively speaks to the transcendent unfolding of a decision to the immanent reality of the child and family. Insights into parental experiences of decision making need not lead to generalization but instead an acknowledgment that different parents may experience the moments of decisions contingently in different ways. For some parents, there are decisions that are not quite decisions. And if there is no perceived choice, the healthcare professional's need for a decision may turn into a moment when the parent can only express his or her wants and desires for his or her child. Parents may experience decision making in a complex variety of ways. Instead, phenomenological bio-ethics ought to be practiced within the worlds of patients, families, and healthcare professionals to offer questions, reflections, and insights for practice.