ABSTRACT

This chapter explores a number of important moments or critical issues in the life of groups which can present challenges to group workers. Meetings have focused on issues to do with how participants have been managing their health in relation to family and work commitments. As a self-help group, families would meet to socialise and share knowledge and experiences about living with a child disabled by this condition. However, several families began to see that more was needed: they wanted the group to become an advocacy group, taking issues of concern such as health benefits for medication, integration of the children into normal schools and publicity campaigns to address discrimination at the level of policy. In reflecting on the group experience, participants offer positive feedback about what they have gained from it—principally the opportunity to meet others confronting the same issues and the sense of not being alone.