ABSTRACT

Introduction This chapter will consider the skills and knowledge that are required for the safe care of children and young people and their families as they enter the final stage of life. Neuberger1 has observed that nothing can prepare a young doctor, nurse or rabbi for facing people whose death is imminent and their families, and realising that it is in their power to make a huge difference. Harrington Jacobs2 states that nursing at the end of life combines the science of nursing with ethics, philosophy, the humanities, diverse world views, and individual and family life experiences in order to provide holistic care to families who are experiencing life-limiting illness. This is where it becomes obvious how the ACT Care Pathway, the Knowledge and Skills Framework and Evidence Based Practice work in action!