ABSTRACT

This chapter focuses on users as individuals who have paid to have genetic testing through an internet-based company. It explores the term autobiology to further tease out the ways in which users are being configured by and configuring online genetic testing. The chapter examines these non-celebrity users who posted their stories of online genetic testing online, on the internet platform YouTube. Timmermans and Buchbinder use the umbrella term 'patients-in-waiting' to capture both of these concepts, and individuals on a spectrum of disease, such as autism. This chapter discusses a range of different users of genetic testing services, from the users documented in the research of others and the users we studied ourselves, such as the celebrity user and the non-celebrity users posting videos on YouTube, and potential users or rather potential non-users. It documents autobiologies in the form of storytelling about biological practices and narratives which weave biological understandings of illness into family histories and other understandings of disease.