ABSTRACT

This chapter presents the more general level of argumentation as to why the involvement of patient advocacy is ethically needed and justified. In 2011, the leading United States American Alzheimer's advocacy group, the Alzheimer's Association, launched a campaign for 'A world free of Alzheimer's. Assuming that the epistemological conditions of the descriptive elements of judgment and subsequent decisions are important, this poses a serious problem. Hermeneutic injustice as structural discrimination means that certain social groups are prima facie marginalized. According to Caroline Cantley and Alison Bowes, any adequate social inclusion requires value commitments, including the recognition of personhood, valuing relationships and citizenship, service development and specialization to address individual needs. While the scientific citizen has been virtually made into the ideal of European science policy, its basic assumption is that there should be something called a knowledge economy in which citizens informed on scientific topics are willing and able to take part in debates and discourses.