ABSTRACT
In 2006, we learned of the Patient Voices program of Pilgrim Projects, an organization based in Cambridge, England, that had begun to develop extensive healthcare work in digital storytelling. In 2003, we were trying to bring the patient's voice into e-learning materials about healthcare quality improvement, and we stumbled across a community history digital story. We began working with individual patients and care providers in late 2003, adopting a home-grown approach, and using very open questions to elicit a story about healthcare in relation to values such as equity, dignity, respect, trust, etc. "The majority of our storytellers are patients, professionals, or those involved in family care, and as such, a great many of them have stories of experiences that have been damaging to them or their loved ones. Patient involvement is now a statutory duty of healthcare organizations in the UK and several recent projects have focused on the benefits of patient involvement.
