ABSTRACT
Advance care planning (ACP) is a dynamic communication process between patients, families, and healthcare professionals about future care and treatment preferences. As most people with dementia gradually lose decisional capacity, ACP has been advocated as particularly relevant for them. However, it remains infrequent among people with dementia. Web-based tools show potential in supporting ACP for people with dementia. This chapter presents (1) how we developed an ACP support website for and with people with dementia and family caregivers and (2) how we evaluated the website's acceptability, feasibility, and effectiveness in facilitating engagement in ACP. The website was developed through an iterative, user-centred approach incorporating insights from people with dementia, family caregivers, and regional stakeholders. It aims to inform people with dementia and family caregivers about ACP and support them in reflecting and communicating about it. Our research showed that users found the website helpful and user-friendly, and supportive of the ACP process. The website enhanced knowledge and readiness related to ACP. Family caregivers used the website independently or together with the person with dementia. Some people with dementia used it on their own; however, most preferred a joint use with family caregivers.
