ABSTRACT
The experience of family caregivers in end-of-life care and the potential for conflict in their relationships with healthcare professionals is largely uncharted territory. My current research in Switzerland focuses on the valuable perspective family caregivers can offer, particularly in home palliative care of amyotrophic lateral sclerosis (ALS) or motor neuron disease (MND) patients. Research into ALS is being conducted in many fields; the main area in which I am interested is the role of informal caregivers of patients living with ALS.
